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Post by roly on Apr 2, 2022 8:04:16 GMT -5
in contact with Willie...please ask him to contact me.
Willie and I have been gifted with Dupuytren's Contracture.
The fix option up here is grim.
Willie got his hand or hands repaired using a far less invasive procedure called Needle Aponeurotomy. I'm hoping Willie can offer advice about his experience.
Thanks folks
roly@northwestel.net
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Post by RufusTeleStrat on Apr 2, 2022 10:56:41 GMT -5
It is better than the 5lb sledge method, and much less painful. There is even a newer method I have heard about where they injecting a type of enzyme into the taut cord in your palm can soften and weaken it — allowing your doctor to later manipulate your hand in an attempt to break the cord and straighten your fingers. The FDA has approved collagenase Clostridium histolyticum (Xiaflex) for this purpose. The advantages and disadvantages of the enzyme injection are similar to needling. Enzyme injections are not offered at all medical institutions.
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Post by rok-a-bill-e on Apr 2, 2022 11:06:19 GMT -5
I seem to be in the early stages of this. I've had the "bumps" in middle of palm for a couple of years now, and lately see the cords forming in my fingers. I don't have any pain or reduced motion at this point and I have not seen a doc yet. Any tips?
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Post by walshb 🦒 on Apr 2, 2022 18:30:07 GMT -5
I'll send willie an email and he'll probably contact you.
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Post by windmill on Apr 2, 2022 18:55:47 GMT -5
I seem to be in the early stages of this. I've had the "bumps" in middle of palm for a couple of years now, and lately see the cords forming in my fingers. I don't have any pain or reduced motion at this point and I have not seen a doc yet. Any tips? Make sure you bring it it up next time you visit your doctor so both of you can track its progression.
My doctor said that when you can't lay the palm of the hand flat on the table it will be time to do something about it.
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Post by Husker77 on Apr 2, 2022 19:36:59 GMT -5
I was diagnosed a couple of weeks ago. My doc wasn’t a big fan but he said if your insurance will cover it try the John Elway treatment. I don’t know the name but I think the company is facts on hand. My doc said wait until you can’t put your hands in your pocket and then he will cut the collagen out which is a longer lasting solution. I can still play and he said it moves slowly and I’m not a spring chicken so I’m going to wait to see what the future holds before having surgery on my hands.
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Post by willie on Apr 2, 2022 22:06:41 GMT -5
Xiaflex injections suck! My son had that done and it was less than successful. The needle aponeurotomy is the way to go...my fingers are still like normal after several years following my treatment via the needle...didn't hurt, was very inexpensive...I drove home from Jupiter Florida back to my home near Atlanta the next day...Dupuytren's is a gift from our Viking ancestors...thanks guys.
willie
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Post by roly on Apr 2, 2022 22:49:32 GMT -5
Dad was Norwegian and mom was British.....double whammy.
My younger brother has had his left hand done FOUR times using the slit your hand open method.
Seems it's only good for a couple years.
Thanks for the email Willie, I will be in touch soon.
Thanks to walshb for contacting willie.
Thanks to all for your thoughts.
My left ring and pinky fingers are permanently at about a 40 degree angle.
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Post by willie on Apr 3, 2022 9:44:22 GMT -5
My older brother (now deceased) had the open surgery method done on both his hands and it was a miserable experience he claimed...disables you for a while, painful,scarred his hands and the condition did recur several years following the procedure....for me, there is no better option for most cases (not all) than the Needle Fasciotomy (aka Needle aponeurotomy). Quick, effective and inexpensive. Problem is finding a hand surgeon that is trained on the procedure. dupuytrens.org/homepage/ |
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Post by walshb 🦒 on Apr 4, 2022 8:02:22 GMT -5
Glad to see you were able to get logged in here, willie! Good to see you here again! You've been missed...
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Post by willie on Apr 4, 2022 8:47:43 GMT -5
Thanks man...  w |
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Post by Laker on Apr 15, 2022 13:56:02 GMT -5
I thought I’d add that my wife just got home from the surgery to correct her case of Dupuytren’s Contracture. The surgeon who performed it said she was not a candidate for the needle approach as he found quite a bit to removed at examination and that was confirmed after he started her procedure. She was told to keep it iced so she’s sitting here with an ice bag on her hand and I’ll soon pour a glass of Macallan on the rocks for her so it will be also iced from the inside. |
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Post by Auf Kiltre on Apr 15, 2022 14:19:12 GMT -5
First off, hand healing Moejo to all who have this dastardly affliction. I'm curious what the first symptoms were for y'all. For a while now I occasionally wake up with my left hand ring finger bent into my palm. I can straighten it on it's own, but there's a disconcerting click/hitch when I do. It eventually goes away but now I can feel the catching point when I flex that finger.
I'm wondering if this is something else or if I should start honing my slide guitar skills now.
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Post by walshb 🦒 on Apr 15, 2022 14:43:39 GMT -5
I'm wondering if this is something else or if I should start honing my slide guitar skills now. Well, it never hurts to do that anyway, so you've got nothing to lose.  Edit to add: Wearing a slide on your left hand ring finger at night would probably prevent this problem. |
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Post by Laker on Apr 15, 2022 14:54:22 GMT -5
First off, hand healing Moejo to all who have this dastardly affliction. I'm curious what the first symptoms were for y'all. For a while now I occasionally wake up with my left hand ring finger bent into my palm. I can straighten it on it's own, but there's a disconcerting click/hitch when I do. It eventually goes away but now I can feel the catching point when I flex that finger. I'm wondering if this is something else or if I should start honing my slide guitar skills now. My wife said she noticed her ring finger seemed to be bowing forward and eventually she couldn’t, painlessly, clap her hands. If she held her fingers extended straight up, her ring finger was tipping forward around 10° when I finally convinced her to have it looked at. She wasn’t afraid of the surgery, just tired of medical procedures as she’d just finished chemo in the last year (we believe she’s out of the woods). |
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Post by WireDog on Apr 16, 2022 1:10:43 GMT -5
Auf Kiltre, I believe you are describing “trigger finger”. The sheath around the finger tendon gets thick over the years. It binds in the narrow channel it slides in at the base of the finger. Then it involuntarily bends the finger and doesn’t want to straighten, as though a cam is in one of the joints. Hurts, too.
I am dealing with this now and had surgery a year ago.
It’s an easy fix 95% of the time. The doc cuts away part of the sheath like stripping insulation off wire. It grows back, thinner.
Not so easy in my case though, lol. I broke my hand decades ago and my knuckles aren’t aligned quite right. The doc has to go in again and strip back a bit more of the sheath.
Fortunately this is not on my fretting hand.
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Post by willie on Apr 16, 2022 9:10:45 GMT -5
Agree...that does sound like trigger finger.
Many, if not most, hand surgeons are not trained on needle aponeurotomy and are highly biased toward traditional surgical modalities to correct DC...others are only additionally okay with the Xiaflex injection to dissolve the collagenous bands. Before I had my needle procedures done, I went to see a local hand surgeon in the Atlanta area who was said to be "tops" and he was all in for cutting my hands up in the old fashioned way...having read about the, then newly available needle procedure, I mentioned it to him and he said he didn't believe that would help...I said "thank you" and left. I will say this...the success of the NA procedure is much dependent on the skill of the hand surgeon...I had mine done twice, first by a doctor in Memphis. My fingers were okay for about six months before they began to bend again....then I sought out the doctor that pioneered the procedure here in the states, Dr. Charles Eaton in Jupiter Florida....he was the master for sure and the whole experience was different...it's been several years now since then and my hands are near perfectly straight except for a slight bend in my right hand baby finger which he didn't work on anyway.
w
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Post by Auf Kiltre on Apr 16, 2022 9:16:29 GMT -5
Yep, I kinda figured it was trigger finger but wasn't sure if trigger finger was maybe a precursor to DC.
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Post by Leftee on Apr 16, 2022 9:36:26 GMT -5
I had a trigger fingers (birdie on my right hand) when I was 15-ish. Surgery was required and it’s been fine since.
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Post by willie on Apr 17, 2022 9:53:22 GMT -5
TF is not a precursor to DC...totally different cause and condition.
w
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Post by roly on Apr 17, 2022 19:44:09 GMT -5
I subscribe to Eaton's monthly news letter.
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Post by Taildragger on Apr 17, 2022 20:37:36 GMT -5
Anybody have a PIC of "the taut cord in your palm"? I have something that looks like that in my right palm but there hasn't been any pain or limit to range of motion associated with it, at least so far.
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Post by roly on Apr 18, 2022 1:28:36 GMT -5
Can't do it right now but I will post some pictures.
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Post by Laker on Apr 18, 2022 8:25:13 GMT -5
Anybody have a PIC of "the taut cord in your palm"? I have something that looks like that in my right palm but there hasn't been any pain or limit to range of motion associated with it, at least so far. This is kind of an extreme case of dupuytrens.  |
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